This is my son, Samuel. He passed away of
On every occasion, it gave him more strength to continue through the days. In his final week, even in an extremely weakened state, you could see him move and get energy from the sun. I feel the two things that kept him going like he did was the love of his family and friends, as well as the energy from enjoying the sun. Both those gave him so much clarity, strength and purpose to carry on as best he could.
Those who know him know his story of how long he lasted on so little near the end. See, like
In the end, this may have been my grace. It slowed me down, kept me home and made me ready for when my son came. It kept me home for my entire family, for Samuel and for me to experience it all. My son passed,
Life is more than just us, giving back always brings a better sense of connection to our community and to the world in some way. Having also experienced the suffering I have and come out better, it is only right to help others with getting better as well. Would the world not be better if we all tried to give a little to something more than ourselves? I
For me, I have three core charities that I support. They mostly stem from the experiences I faced with my son. So, because of that, I have three core charities I help, I then try to help out in my community and lastly, I always keep my eye out for the other thing, something that I just give a little too to lend a compassionate hand.
Cure Tay Sachs Foundation:
The Cure Tay-Sachs Foundation is dedicated to funding the on-going research needed to find treatments and a cure for Tay-Sachs Disease. http://www.curetay-sachs.org/
National Tay Sachs and Allied Diseases:
National Tay-Sachs & Allied Diseases Association (NTSAD) is one of the oldest patient advocacy groups in the United States. They focus on funding research, supporting over 500 families and individuals worldwide, and raising awareness to prevent disease.
Today, NTSAD is recognized as a leading non-profit patient group with a demonstrated commitment to service, science
Roger Neilson House in Ottawa:
Roger Neilson House enriches the lives of children, youth and their families facing progressive
Our team provides respite, end of life,
Skate for Sammy: Skate for Sammy is a charity event that was started for my family to help ease some financial burden and see how the community cared for us. It was so rewarding, my family decided to carry it on and continue to help other families. We have done two more over the last few years, helping two other families with sick kids. We have also grown it to bring in more funding, more support to the families and raise awareness to those in the community about the diseases of the kids and the resources out there to help families. This event was in
Minor Hockey. I have been involved as Coach, Trainer, Manager
As part of my community involvement, I continue to work on projects and activities that will help others in my community and look for new ways where my experience and abilities can make other’s lives better.